Pediatric Links

Section Editor - Robert Gray, Ph.D.

Kennedy Krieger Institute

Pediatric Neuropsychology Links -
Table of Contents

Pediatric Neuropsychology Resources

American Academy of Child & Adolescent Psychiatry
American Academy of Pediatrics - References and resources for pediatric specialists
Child Neurology Home Page - Resources and references for patients and professionals including an online course illustrating available internet resources in the area of child neurology
The National Institute of Mental Health website with numerous references related to child and adolescent mental health
Internet drug index - Part of the Healthcentral.com Network
National Institute of Child Health and Human Development
National Organization for Rare Disorders - Includes 3 large databases (Rare Disease Database, Organizational Database, Orphan Drug Designation Database)
OMIM - Online Mendelian Inheritance in Man - catalog of human genes and genetic disorders
PediatricNeurology.Com - contains select information on topics of interest to parents and other care-givers of children with neurological problems.
School Psychology Resources Online - Loaded with links covering specific disorders, assessment resources, educational law and parent info
Specific Diagnoses Card Catalog - Comprehensive database created by the Family Village Web Site

Resources for Parents & Children

BBC radio lecture series - The Emerging Mind – intriguing neuroscience lectures and a useful interactive brain glossary
Children Youth and Families Education and Research Network - Research based information for parents and families.
Kid Source OnLine - Education and healthcare information for parents
Medline Health Information on Infant and Toddler Development - information on developmental milestones, nutrition, anatomy, and specific concerns/conditions.
National Education Association – In depth information regarding special education/IDEA and no child left behind
NICHCY (National Information Center for Children and Youth with Disabilities) Dissemination Center - Information on IDEA, special education law, No Child Left Behind and research-based information on effective educational practices.
Neuroscience for Kids! – interactive experiments and activities as well as links to multiple internet neuroscience resources
US Department of Education - parent guide to special education law

Pediatric Disorders

AIDS/HIV - collaborative site hosted by the François-Xavier Bagnoud (FXB) Center and the Center for HIV Information (CHI)
Brain Injury - Brain injury resources and information
Cerebral Palsy - United Cerebral Palsy
Conduct Disorder - links to information regarding CD diagnosis, treatment and research
Cornelia de Lange Syndrome (CdLS) Foundation, Inc.
Epilepsy Foundation of America
Leukemia Society of America
Mental Retardation - The Arc of the United States
Pediatric Neurosurgery at USC - excellent resource covering physiology, anatomy and treatment of a variety of pediatric conditions (tumors, trauma, hydrocephalus)
Tourette Syndrome - Tourette Syndrome Association

Autism/Pervasive Developmental Disorders

Asperger Syndrome: O.A.S.I.S. On-Line Asperger Syndrome Info & Support
Autism at Yale - Yale University - Evaluation and Research of Autism, Asperger's Syndrome, and the Pervasive Developmental Disorders
Division TEACCH - Autism Information - Home Page of Division TEACCH (Treatment and Education of Autistic and related Communication Handicapped Children
National Alliance for Autism Research

Genetic & Chromosomal Disorders

Chromosomal Mosaicism Website - information for patients, families, health care providers, students and the general public on the unique conditions of chromosomal mosaicism
Cystic Fibrosis Foundation
Down Syndrome WWW Page
Fragile X Research Foundation Website (FRAXA)
International Rett Syndrome Association
Leukodystrophies - United Leukodystrophy Foundation
Neurofibromatosis - National Neurofibromatosis Foundation
The Organic Acidemia Association - loaded with information on organic acidemias and other inborn errors of metabolism
Prader-Willi Syndrome Association
Sturge-Weber Foundation Website
Williams Syndrome Association

Attention Deficit Hyperactivity Disorders

ADHD e-BOOK (free) - this resource e-book emphasizes current executive function research as the key to understanding and treatment. It empathically summarizes the best treatment advice; and includes chapter for parents, teachers, and the kids.
Children and Adults With Attention Deficit Disorders - National non-profit organization representing children and adults with attention-deficit/hyperactivity disorder
The National Attention Deficit Disorder Association

Learning & Communication Disorders

Central Auditory Processing Disorders - Resources for parents of children with CAPD
Dyslexia - The International Dyslexia Association formerly The Orton Dyslexia Society
Learning Disability Resources - LD online
Nonverbal learning disorders - NLDline
Speech Language Pathology Website - information service to anyone who is interested in learning about speech and language development and associated disorders

Children's Hospitals, Clinics & Training Sites

Center for the Study of Development and Learning - Chapel Hill, North Carolina - Neuropsychology consultation services
Children's Hospital - Boston - Internship and postdoctoral positions in pediatric neuropsychology
Children's Hospital - Denver - Neurology and neuropsychology services
Children's Hospital of Philadelphia - Department of Psychology - pre and postdoctoral training
Children's Memorial Hospital in Chicago - child and adolescent psychiatry outpatient services
Kennedy Krieger Institute - Baltimore, Maryland - Department of Neuropsychology offers pre and postdoctoral training in pediatric neuropsychology
St. Louis Children's Hospital - Pediatric psychology and neuropsychology services
Texas Children’s Learning Support Center - provides pediatric neuropsychological and psychological services and training

Pediatric Neuropsychology Journals

American Academy of Pediatrics Online Journal
Archives of Pediatrics & Adolescent Medicine
Child Neuropsychology
Developmental Neuropsychology
Developmental Psychology
Journal of the American Academy of Child and Adolescent Psychiatry
Journal of Pediatric Psychology
The Journal Watch Pediatrics - Edited and reviewed by more than 80 physicians, JWatch regularly combs 180 medical journals for important findings in Pediatrics.
School Psychology Quarterly

Pediatric Neuropsychology E-Groups

The International Mail List for Pediatric Neuropsychologists. Subscribe by sending an email to the list moderator at hughe029@umn.edu.
Child-Neuro E-Mail List - The mail list CHILD-NEURO@WAISMAN.WISC.EDU is an international discussion group which deals with clinical and research topics in Child Neurology. Parents of children with neurological problems may wish to subscribe to Child-Neuro-Parent.

Recommended Books & Materials